We're often told that "we treat symptoms, and don't like to label people", however I absolutely disagree with this sentiment. It's nonsensical, if there are apparent and physical symptoms of a condition or comorbid conditions and you are purposefully undiagnosed because they don't like to 'label' you, this is so inherently ableist, and I think because you hear this rhetoric so frequently, especially in paediatric care, that it's important to unpick and discuss what's actually at play when they say this, and how it can feed into, and reinforce a patient's internalised ableism.
Hello lovelies, I just want to begin by thanking those of you who expressed their support for my recent blog post regarding self-nurture and feeding my inner child. If you are following my Instagram account, or have read my newest blog publications, you'll likely be aware of the fact I have battled mental illness for [...]
May 9 - "This past weekend has been rough - my body feels like it's falling apart beneath my skin, uncontrollable; fighting against itself - the epitome of connective tissue disorder." Warm weather is a rarity in northern England, so I try my very best to go into the garden whenever my PoTS and ME [...]
My love for writing has been a constant throughout my life, however, it wasn't until March 2018 that I decided to turn this passion into an active hobby in order to share my experience with issues concerning topics close to my heart. Fast-forward to the present day and I have had the privilege of meeting [...]
Hello Blooms, I have felt a great sense of hesitation whenever I think about writing a blog post about the topic I shall be discussing today with you all. Yet at this point whenever I feel hesitant to talk about how I feel, I just go ahead and do it. I'm sick of hiding behind [...]
Hello Blooms, I first off want to thank you for the positive feedback I received on my last blog post. It was one regarding the exploitation of disability - and yet again I am here to call out those who are doing just that. Ehlers Danlos Syndrome is a genetic condition causing a defect in [...]
Blooms... Growing up in a body which behaved differently than those surrounding me, both in my personal life and in the media, was less than a walk in the park let me tell you. The irony. • My name is Lori (Loren), and I am a 19 y/o woman living with a disability known as [...]