"How have your disabilities affected your relationships?" To understand how my relationships have been affected as a result of my disabilities, it's important to understand that my conditions have caused a shift in my relationship with myself. Chronic pain is difficult - the constant struggle to get through the days, some easier to navigate than [...]
Tag: Fibromyalgia
“Disabled people have sex?”
In March and April I had the amazing opportunity to write blog posts for Intimately - an accessible and inclusive underwear company. Both posts centred around sex with disability - the first about embracing one's sexuality with a disability, and the second about navigating sex with disability. Photo credit: Hannah Todd Photography This blog post [...]
When it all gets a bit much
CW: infertility Hello Blooms, It's a f*cking weird time to be alive huh? THE END No I'm only pulling your leg - however this pretty much sums up the alternate reality we seem to be existing in; almost like we're floating in space, waiting to wake up from this bloody nightmare. I'm having a bit [...]
Finding Strength in Stripes: A collaborative piece sharing the stories of those with EDS/HSD
My love for writing has been a constant throughout my life, however, it wasn't until March 2018 that I decided to turn this passion into an active hobby in order to share my experience with issues concerning topics close to my heart. Fast-forward to the present day and I have had the privilege of meeting [...]
Bloom’s recommended – Letter to Pain Management — tearydawn
I don’t know how to articulate my feelings and experiences in the small amount of time that we’re allotted. I wish I could take you home for a few days to see exactly what my life is like and what I go through. It’s not obvious in a half hour appointment where I’m simply sitting […] [...]
The EDS Chronicles: Losing trust in professionals (1/2)
Hello Blooms, I have felt a great sense of hesitation whenever I think about writing a blog post about the topic I shall be discussing today with you all. Yet at this point whenever I feel hesitant to talk about how I feel, I just go ahead and do it. I'm sick of hiding behind [...]
Mental Health Double Standards
Hello Blooms, UM...I HAVE A QUICK QUESTION Why do we respect suffering in silence; not wanting to 'trouble' anyone with a so-called problem? Why do we expect this of ourselves yet encourage other people to talk to us about anything that is on their mind? We are upholding the negative stereotypes we are actively trying [...]
The EDS Chronicles: Fearless Christianity – praying upon the sick and vulnerable
Hello Blooms, I first off want to thank you for the positive feedback I received on my last blog post. It was one regarding the exploitation of disability - and yet again I am here to call out those who are doing just that. Ehlers Danlos Syndrome is a genetic condition causing a defect in [...]
The EDS Chronicles: stripes w/ a 100% chance of fog
Blooms, Waking up in the morning, rubbing the sleep out of your eyes, switching off the alarm and opening the curtains. After your eyes have adjusted to the bright light of the Autumn morn, you notice a fog accumulating. You brush it off and continue to get ready for the day ahead. Yet the fog [...]
In Sickness and Unhealth
Hi Blooms. Recently I have been struggling with the hindering symptoms which encompass my disability, and I feel like putting the confusion, frustration, and uncertainty down upon 'paper', I can express how I'm feeling in a way which is both cathartic, and hopefully relatable to those of you out there who are in a similar [...]
