I feel it in my bones (announcement)

May 9 - "This past weekend has been rough - my body feels like it's falling apart beneath my skin, uncontrollable; fighting against itself - the epitome of connective tissue disorder." Warm weather is a rarity in northern England, so I try my very best to go into the garden whenever my PoTS and ME [...]

A Chronic Perspective of Relationships

"How have your disabilities affected your relationships?" To understand how my relationships have been affected as a result of my disabilities, it's important to understand that my conditions have caused a shift in my relationship with myself. Chronic pain is difficult - the constant struggle to get through the days, some easier to navigate than [...]

The EDS Chronicles: Losing trust in professionals (2/2)

Dear Blooms, Towards the end of December, I published a blog post concerning my experiences with professionals and why I have lost trust in so many of them. Today, I wish to finish this two-part edition to The EDS Chronicles. In part one I mentioned briefly that I shall cover ensuring professional accountability and the [...]

Bloom’s recommended – Letter to Pain Management — tearydawn

I don’t know how to articulate my feelings and experiences in the small amount of time that we’re allotted. I wish I could take you home for a few days to see exactly what my life is like and what I go through. It’s not obvious in a half hour appointment where I’m simply sitting […] [...]