My love for writing has been a constant throughout my life, however, it wasn't until March 2018 that I decided to turn this passion into an active hobby in order to share my experience with issues concerning topics close to my heart. Fast-forward to the present day and I have had the privilege of meeting [...]
Tag: ehlersdanlossyndrome
The EDS Chronicles: Losing trust in professionals (2/2)
Dear Blooms, Towards the end of December, I published a blog post concerning my experiences with professionals and why I have lost trust in so many of them. Today, I wish to finish this two-part edition to The EDS Chronicles. In part one I mentioned briefly that I shall cover ensuring professional accountability and the [...]
OI, 2020! What kind of f*ckery is this?
Hello Blooms, This shall be kept short and sweet as I haven't much to say other than happy new year, and I hope y'all had a fabulous Christmas (if you celebrate that is). 2019 was a rollercoaster of a year, as many years are for people with chronic illness and mental health difficulties. However, overall [...]
Bloom’s recommended – Letter to Pain Management — tearydawn
I don’t know how to articulate my feelings and experiences in the small amount of time that we’re allotted. I wish I could take you home for a few days to see exactly what my life is like and what I go through. It’s not obvious in a half hour appointment where I’m simply sitting […] [...]
The EDS Chronicles: Losing trust in professionals (1/2)
Hello Blooms, I have felt a great sense of hesitation whenever I think about writing a blog post about the topic I shall be discussing today with you all. Yet at this point whenever I feel hesitant to talk about how I feel, I just go ahead and do it. I'm sick of hiding behind [...]
Conquering my cystic acne for good?
Hello blooms Some of you may be aware that I have suffered from chronic cystic acne for 4 years, and this deeply affected my self-image for quite some time. My insecurities surrounding my skin and the pain of acne cysts drove me to explore the world of skincare. However nothing worked for the long run, [...]
The EDS Chronicles: Fearless Christianity – praying upon the sick and vulnerable
Hello Blooms, I first off want to thank you for the positive feedback I received on my last blog post. It was one regarding the exploitation of disability - and yet again I am here to call out those who are doing just that. Ehlers Danlos Syndrome is a genetic condition causing a defect in [...]
The EDS Chronicles: Dating Shouldn’t be a Chronic Pain
Blooms, Over the past few months, I have been relatively busy over the past few months - attending hospital appointments, travelling to Scotland for a family graduation, seeing friends before the uni year commenced, and OH I downloaded Tinder. My experience with Tinder has been interesting - I've had only decent encounters with people who [...]
The EDS Chronicles: stripes w/ a 100% chance of fog
Blooms, Waking up in the morning, rubbing the sleep out of your eyes, switching off the alarm and opening the curtains. After your eyes have adjusted to the bright light of the Autumn morn, you notice a fog accumulating. You brush it off and continue to get ready for the day ahead. Yet the fog [...]
The EDS Chronicles: skin deep
Blooms... Growing up in a body which behaved differently than those surrounding me, both in my personal life and in the media, was less than a walk in the park let me tell you. The irony. • My name is Lori (Loren), and I am a 19 y/o woman living with a disability known as [...]
