May 9 - "This past weekend has been rough - my body feels like it's falling apart beneath my skin, uncontrollable; fighting against itself - the epitome of connective tissue disorder." Warm weather is a rarity in northern England, so I try my very best to go into the garden whenever my PoTS and ME [...]
Tag: ehlersdanlossyndrome
A Chronic Perspective of Relationships
"How have your disabilities affected your relationships?" To understand how my relationships have been affected as a result of my disabilities, it's important to understand that my conditions have caused a shift in my relationship with myself. Chronic pain is difficult - the constant struggle to get through the days, some easier to navigate than [...]
“Disabled people have sex?”
In March and April I had the amazing opportunity to write blog posts for Intimately - an accessible and inclusive underwear company. Both posts centred around sex with disability - the first about embracing one's sexuality with a disability, and the second about navigating sex with disability. Photo credit: Hannah Todd Photography This blog post [...]
From Sweats to Suspenders
I think we can all simultaneously agree that it has been a difficult few months, as we're navigating a situation which the majority of us have never experienced before. At first it seemed almost surreal, like it was a strange parallel dystopian universe - however now it's something that I am finding myself slowly [...]
When it all gets a bit much
CW: infertility Hello Blooms, It's a f*cking weird time to be alive huh? THE END No I'm only pulling your leg - however this pretty much sums up the alternate reality we seem to be existing in; almost like we're floating in space, waiting to wake up from this bloody nightmare. I'm having a bit [...]
Finding Strength in Stripes: A collaborative piece sharing the stories of those with EDS/HSD
My love for writing has been a constant throughout my life, however, it wasn't until March 2018 that I decided to turn this passion into an active hobby in order to share my experience with issues concerning topics close to my heart. Fast-forward to the present day and I have had the privilege of meeting [...]
The EDS Chronicles: Losing trust in professionals (2/2)
Dear Blooms, Towards the end of December, I published a blog post concerning my experiences with professionals and why I have lost trust in so many of them. Today, I wish to finish this two-part edition to The EDS Chronicles. In part one I mentioned briefly that I shall cover ensuring professional accountability and the [...]
OI, 2020! What kind of f*ckery is this?
Hello Blooms, This shall be kept short and sweet as I haven't much to say other than happy new year, and I hope y'all had a fabulous Christmas (if you celebrate that is). 2019 was a rollercoaster of a year, as many years are for people with chronic illness and mental health difficulties. However, overall [...]
Bloom’s recommended – Letter to Pain Management — tearydawn
I don’t know how to articulate my feelings and experiences in the small amount of time that we’re allotted. I wish I could take you home for a few days to see exactly what my life is like and what I go through. It’s not obvious in a half hour appointment where I’m simply sitting […] [...]
The EDS Chronicles: Losing trust in professionals (1/2)
Hello Blooms, I have felt a great sense of hesitation whenever I think about writing a blog post about the topic I shall be discussing today with you all. Yet at this point whenever I feel hesitant to talk about how I feel, I just go ahead and do it. I'm sick of hiding behind [...]
