I never thought I would make it to 20, I had developed this prophecy that I wouldn't make it through the difficulties endured during my mid teens.
I slowly began to hate using my walking stick, crutches, walking frame, and wheelchair - I failed to invest in my comfort and sense of self-expression because I was living in a state of denial. I didn't WANT to think of a future with mobility aids; it felt like I would be giving in.
May 9 - "This past weekend has been rough - my body feels like it's falling apart beneath my skin, uncontrollable; fighting against itself - the epitome of connective tissue disorder." Warm weather is a rarity in northern England, so I try my very best to go into the garden whenever my PoTS and ME [...]