I feel it in my bones (announcement)

May 9 - "This past weekend has been rough - my body feels like it's falling apart beneath my skin, uncontrollable; fighting against itself - the epitome of connective tissue disorder." Warm weather is a rarity in northern England, so I try my very best to go into the garden whenever my PoTS and ME [...]

Gene me up Scotty

Hello Blooms, Firstly, I wish to take a moment to thank the individuals who reached out and said such positive things about my last blog post, Journaling and Riding the Depression Wave (w/ exercises). Secondly, you'll be pleased to know storm Doris has come to an end and it goes without saying I am beyond [...]

Bloom’s recommended – Letter to Pain Management — tearydawn

I don’t know how to articulate my feelings and experiences in the small amount of time that we’re allotted. I wish I could take you home for a few days to see exactly what my life is like and what I go through. It’s not obvious in a half hour appointment where I’m simply sitting […] [...]

The EDS Chronicles: Fearless Christianity – praying upon the sick and vulnerable

Hello Blooms, I first off want to thank you for the positive feedback I received on my last blog post. It was one regarding the exploitation of disability - and yet again I am here to call out those who are doing just that. Ehlers Danlos Syndrome is a genetic condition causing a defect in [...]

The EDS Chronicles: Dating Shouldn’t be a Chronic Pain

Blooms, Over the past few months, I have been relatively busy over the past few months - attending hospital appointments, travelling to Scotland for a family graduation, seeing friends before the uni year commenced, and OH I downloaded Tinder. My experience with Tinder has been interesting - I've had only decent encounters with people who [...]