I am aware that the vast majority of people who have been actively engaging with my content, are involved in the chronic illness/disabled community - and like every single disabled/less abled person I've had the pleasure of talking with, I have experienced difficulties navigating interabled friendships and relationships in the past, purely because of the lack of understanding, and societal ableism which resides in those who haven't had personal experience with disability prior to the friendship.
Tag: disabilityawareness
Finding Strength in Stripes: A collaborative piece sharing the stories of those with EDS/HSD
My love for writing has been a constant throughout my life, however, it wasn't until March 2018 that I decided to turn this passion into an active hobby in order to share my experience with issues concerning topics close to my heart. Fast-forward to the present day and I have had the privilege of meeting [...]
The EDS Chronicles: Losing trust in professionals (1/2)
Hello Blooms, I have felt a great sense of hesitation whenever I think about writing a blog post about the topic I shall be discussing today with you all. Yet at this point whenever I feel hesitant to talk about how I feel, I just go ahead and do it. I'm sick of hiding behind [...]
The EDS Chronicles: Fearless Christianity – praying upon the sick and vulnerable
Hello Blooms, I first off want to thank you for the positive feedback I received on my last blog post. It was one regarding the exploitation of disability - and yet again I am here to call out those who are doing just that. Ehlers Danlos Syndrome is a genetic condition causing a defect in [...]
Category is: appropriating illness and disabilities
Hey Blooms, I hope you are all doing well, and that everyone who celebrated Halloween had a great time. This year I haven't celebrated as much as I normally do, because chronic illness can take one look at my plans and throw 'em out the window. My ME is flaring up as of late, and [...]
The EDS Chronicles: Dating Shouldn’t be a Chronic Pain
Blooms, Over the past few months, I have been relatively busy over the past few months - attending hospital appointments, travelling to Scotland for a family graduation, seeing friends before the uni year commenced, and OH I downloaded Tinder. My experience with Tinder has been interesting - I've had only decent encounters with people who [...]
The EDS Chronicles: stripes w/ a 100% chance of fog
Blooms, Waking up in the morning, rubbing the sleep out of your eyes, switching off the alarm and opening the curtains. After your eyes have adjusted to the bright light of the Autumn morn, you notice a fog accumulating. You brush it off and continue to get ready for the day ahead. Yet the fog [...]
The EDS Chronicles: skin deep
Blooms... Growing up in a body which behaved differently than those surrounding me, both in my personal life and in the media, was less than a walk in the park let me tell you. The irony. • My name is Lori (Loren), and I am a 19 y/o woman living with a disability known as [...]
Living with Chronic Illness
Dear Blooms, Thank you for once again reading my work. I don't normally start blog posts off like this as I'm aware some people don't read my work for me, but the topic of conversation. However, I want to say how grateful I am to put something out there into the world which has allowed [...]
In Sickness and Unhealth
Hi Blooms. Recently I have been struggling with the hindering symptoms which encompass my disability, and I feel like putting the confusion, frustration, and uncertainty down upon 'paper', I can express how I'm feeling in a way which is both cathartic, and hopefully relatable to those of you out there who are in a similar [...]
