Dear Blooms, Towards the end of December, I published a blog post concerning my experiences with professionals and why I have lost trust in so many of them. Today, I wish to finish this two-part edition to The EDS Chronicles. In part one I mentioned briefly that I shall cover ensuring professional accountability and the [...]
Tag: disability
Gene me up Scotty
Hello Blooms, Firstly, I wish to take a moment to thank the individuals who reached out and said such positive things about my last blog post, Journaling and Riding the Depression Wave (w/ exercises). Secondly, you'll be pleased to know storm Doris has come to an end and it goes without saying I am beyond [...]
Bloom’s recommended – Letter to Pain Management — tearydawn
I don’t know how to articulate my feelings and experiences in the small amount of time that we’re allotted. I wish I could take you home for a few days to see exactly what my life is like and what I go through. It’s not obvious in a half hour appointment where I’m simply sitting […] [...]
The EDS Chronicles: Losing trust in professionals (1/2)
Hello Blooms, I have felt a great sense of hesitation whenever I think about writing a blog post about the topic I shall be discussing today with you all. Yet at this point whenever I feel hesitant to talk about how I feel, I just go ahead and do it. I'm sick of hiding behind [...]
Mental Health Double Standards
Hello Blooms, UM...I HAVE A QUICK QUESTION Why do we respect suffering in silence; not wanting to 'trouble' anyone with a so-called problem? Why do we expect this of ourselves yet encourage other people to talk to us about anything that is on their mind? We are upholding the negative stereotypes we are actively trying [...]
The EDS Chronicles: Fearless Christianity – praying upon the sick and vulnerable
Hello Blooms, I first off want to thank you for the positive feedback I received on my last blog post. It was one regarding the exploitation of disability - and yet again I am here to call out those who are doing just that. Ehlers Danlos Syndrome is a genetic condition causing a defect in [...]
Category is: appropriating illness and disabilities
Hey Blooms, I hope you are all doing well, and that everyone who celebrated Halloween had a great time. This year I haven't celebrated as much as I normally do, because chronic illness can take one look at my plans and throw 'em out the window. My ME is flaring up as of late, and [...]
The EDS Chronicles: Dating Shouldn’t be a Chronic Pain
Blooms, Over the past few months, I have been relatively busy over the past few months - attending hospital appointments, travelling to Scotland for a family graduation, seeing friends before the uni year commenced, and OH I downloaded Tinder. My experience with Tinder has been interesting - I've had only decent encounters with people who [...]
The EDS Chronicles: skin deep
Blooms... Growing up in a body which behaved differently than those surrounding me, both in my personal life and in the media, was less than a walk in the park let me tell you. The irony. • My name is Lori (Loren), and I am a 19 y/o woman living with a disability known as [...]
The EDS Chronicles: Taking my autonomy back
Hello Blooms, As I'm sat with my notebook and pen considering a possible subject to write about, my eyes fall to the bus timetable that's opened on my laptop - and I cannot help but smile. This may be something which a lot of you out there are mildly concerned at, that I would think [...]
