I never thought I would make it to 20, I had developed this prophecy that I wouldn't make it through the difficulties endured during my mid teens.
I slowly began to hate using my walking stick, crutches, walking frame, and wheelchair - I failed to invest in my comfort and sense of self-expression because I was living in a state of denial. I didn't WANT to think of a future with mobility aids; it felt like I would be giving in.
May 9 - "This past weekend has been rough - my body feels like it's falling apart beneath my skin, uncontrollable; fighting against itself - the epitome of connective tissue disorder." Warm weather is a rarity in northern England, so I try my very best to go into the garden whenever my PoTS and ME [...]
"How have your disabilities affected your relationships?" To understand how my relationships have been affected as a result of my disabilities, it's important to understand that my conditions have caused a shift in my relationship with myself. Chronic pain is difficult - the constant struggle to get through the days, some easier to navigate than [...]
In March and April I had the amazing opportunity to write blog posts for Intimately - an accessible and inclusive underwear company. Both posts centred around sex with disability - the first about embracing one's sexuality with a disability, and the second about navigating sex with disability. Photo credit: Hannah Todd Photography This blog post [...]
I think we can all simultaneously agree that it has been a difficult few months, as we're navigating a situation which the majority of us have never experienced before. At first it seemed almost surreal, like it was a strange parallel dystopian universe - however now it's something that I am finding myself slowly [...]
Hello Blooms this blog post is going to be regarding how the pandemic has affected me, and how I'm trying to stay sane. A few days ago I published 'Head above water' in which I discussed the importance of safeguarding the vulnerable, and I received a positive response - so I must thank you for [...]
My love for writing has been a constant throughout my life, however, it wasn't until March 2018 that I decided to turn this passion into an active hobby in order to share my experience with issues concerning topics close to my heart. Fast-forward to the present day and I have had the privilege of meeting [...]
Dear Blooms, Towards the end of December, I published a blog post concerning my experiences with professionals and why I have lost trust in so many of them. Today, I wish to finish this two-part edition to The EDS Chronicles. In part one I mentioned briefly that I shall cover ensuring professional accountability and the [...]
Hello Blooms, Firstly, I wish to take a moment to thank the individuals who reached out and said such positive things about my last blog post, Journaling and Riding the Depression Wave (w/ exercises). Secondly, you'll be pleased to know storm Doris has come to an end and it goes without saying I am beyond [...]