As you likely know, especially if you’ve caught up with July’s Patreon newsletter - I have recently started getting tattoos; something I have wanted to do since I was 15. So in other words a long ass time. However I had many hesitations concerning my skin, and how Ehlers-Danlos Syndrome would impact my ability to be tattooed, and whether or not [...]
We as a community understand that, it’s the active listening, fundraising, and making these alterations which is the really important matter - especially regarding smaller businesses. The excuse however, which I often hear being brought up, is using the mere fact you are a small business to deflect criticism about inaccessibility. Just because you’re a small business, doesn’t mean you can’t actively do all you can within your means to acquire support and ensure you’re as accommodating to a large minority.
Happy pride month!I’m aware that it may be news for many of my readers/followers that I’m queer, non-binary, and I’m also disabled.I’ve made blog posts in the past discussing topics such as growing up queer and disabled however as my style of content production has evolved, I have taken to finding empowerment and comfort in talking about more taboo or lesser [...]
We're often told that "we treat symptoms, and don't like to label people", however I absolutely disagree with this sentiment. It's nonsensical, if there are apparent and physical symptoms of a condition or comorbid conditions and you are purposefully undiagnosed because they don't like to 'label' you, this is so inherently ableist, and I think because you hear this rhetoric so frequently, especially in paediatric care, that it's important to unpick and discuss what's actually at play when they say this, and how it can feed into, and reinforce a patient's internalised ableism.
Pulling up in the carpark of our local day hospital, I felt a surge of excitement along with an overwhelming sense of bittersweet relief. Like many disabled people, I had to fight for my vaccine as I wasn’t considered as vulnerable enough to receive a live saving jab, but vulnerable enough to be advised to shield indoors, like I had been for over an entire year.
feel there has been so much going on all at once but nothing particularly discernible - perhaps this is a result of the last leg of lockdown 3.0. The past few months have been difficult for almost everyone I know, especially in regards to mental wellbeing; which of course, given we've been isolated from the outside world (no matter how necessary) is entirely understandable.
My relationship with my sexuality has always been disorganized, even before I became legitimately disabled by my conditions. I grew up feeling like I needed to fit into a mold I wasn't shaped for, and a body I didn't even understand was objectified by many people around me from a young age.
Valentine's day is approaching, and whether you choose to celebrate it or not - either that be with a partner, or put a platonic twist on it and have a fun filled day to celebrate your love for your best friend, it's always nice to ensure you have put thought and effort into the way you choose to share your love and affection. I like to think I'm a good gift giver, and I absolutely love celebratory holidays, therefore I thought it wise to share some suggestions I have for a fellow spoonie in your life, with an emphasis on independent businesses.
I am aware that the vast majority of people who have been actively engaging with my content, are involved in the chronic illness/disabled community - and like every single disabled/less abled person I've had the pleasure of talking with, I have experienced difficulties navigating interabled friendships and relationships in the past, purely because of the lack of understanding, and societal ableism which resides in those who haven't had personal experience with disability prior to the friendship.
As I get back on my feet (or wheels so to speak), I feel it to be even more pressing to share ways to support creators -in particular disabled creators; as the social media algorithms appear to be either inadvertently or intentionally targeting the community.