We're often told that "we treat symptoms, and don't like to label people", however I absolutely disagree with this sentiment. It's nonsensical, if there are apparent and physical symptoms of a condition or comorbid conditions and you are purposefully undiagnosed because they don't like to 'label' you, this is so inherently ableist, and I think because you hear this rhetoric so frequently, especially in paediatric care, that it's important to unpick and discuss what's actually at play when they say this, and how it can feed into, and reinforce a patient's internalised ableism.
Tag: chronicpain
Mental Health Relapses – A Disabled Experience
Hello lovelies, I just want to begin by thanking those of you who expressed their support for my recent blog post regarding self-nurture and feeding my inner child. If you are following my Instagram account, or have read my newest blog publications, you'll likely be aware of the fact I have battled mental illness for [...]
Valentine Gifts for Spoonies
Valentine's day is approaching, and whether you choose to celebrate it or not - either that be with a partner, or put a platonic twist on it and have a fun filled day to celebrate your love for your best friend, it's always nice to ensure you have put thought and effort into the way you choose to share your love and affection. I like to think I'm a good gift giver, and I absolutely love celebratory holidays, therefore I thought it wise to share some suggestions I have for a fellow spoonie in your life, with an emphasis on independent businesses.
So your friend’s disabled…
I am aware that the vast majority of people who have been actively engaging with my content, are involved in the chronic illness/disabled community - and like every single disabled/less abled person I've had the pleasure of talking with, I have experienced difficulties navigating interabled friendships and relationships in the past, purely because of the lack of understanding, and societal ableism which resides in those who haven't had personal experience with disability prior to the friendship.
Accessing my content – changes in 2021
[Image description: pale pink background with black bold heading reading 'change', beneath it in a handwriting font reads 'isn't always a bad thing'. There is a black illustration of a wildflower on the left hand side.] Hello my lovelies, As you may know if you have read my recent blog post titled 'politicizing disabled bodies' [...]
Politicizing Disabled Bodies
Hello my lovely folx, how are you all doing today? I know it has been long time, no see here on the blog - but that's a topic for another time entirely. As today, I bring frustrating and angering news relating to my IG account, and the action taken by the platform to censor yet [...]
Disability and Sexuality, part 1
As a disabled womxn I oftentimes used to feel left out of the conversations regarding sex, relationships, and sexual health. So earlier this year I took it upon myself to change that in a small capacity, not just for myself- but with the hope that it would serve as representation in a small way for [...]
Calling all disabled babes!
I write today regarding my project, which aims to provide a platform for individuals to join the conversation about sexuality and sexual health as a disabled person; as there is a significant lack of disabled representation in discussions surrounding these topics. Sexual wellbeing and owning our sexuality is just as important as any other aspect of health and wellness[...]
Needing a carer from a sick person’s perspective | ME Association
Hello, my name’s Lori- AKA ‘Bud to Bloom’, a UK based disability, and mental health blogger living with Ehlers Danlos Syndrome, ME, and a host of other comorbidities. My journey with chronic illness started at age 13, and like many spoonie warriors it appeared to come from nowhere. However after a few years I was [...]
Reflections – 20 going on 40
I never thought I would make it to 20, I had developed this prophecy that I wouldn't make it through the difficulties endured during my mid teens.
