Hello, my name’s Lori- AKA ‘Bud to Bloom’, a UK based disability, and mental health blogger living with Ehlers Danlos Syndrome, ME, and a host of other comorbidities. My journey with chronic illness started at age 13, and like many spoonie warriors it appeared to come from nowhere. However after a few years I was [...]
Tag: chronicfatiguesyndrome
I feel it in my bones (announcement)
May 9 - "This past weekend has been rough - my body feels like it's falling apart beneath my skin, uncontrollable; fighting against itself - the epitome of connective tissue disorder." Warm weather is a rarity in northern England, so I try my very best to go into the garden whenever my PoTS and ME [...]
“Disabled people have sex?”
In March and April I had the amazing opportunity to write blog posts for Intimately - an accessible and inclusive underwear company. Both posts centred around sex with disability - the first about embracing one's sexuality with a disability, and the second about navigating sex with disability. Photo credit: Hannah Todd Photography This blog post [...]
Finding Strength in Stripes: A collaborative piece sharing the stories of those with EDS/HSD
My love for writing has been a constant throughout my life, however, it wasn't until March 2018 that I decided to turn this passion into an active hobby in order to share my experience with issues concerning topics close to my heart. Fast-forward to the present day and I have had the privilege of meeting [...]
The EDS Chronicles: Losing trust in professionals (1/2)
Hello Blooms, I have felt a great sense of hesitation whenever I think about writing a blog post about the topic I shall be discussing today with you all. Yet at this point whenever I feel hesitant to talk about how I feel, I just go ahead and do it. I'm sick of hiding behind [...]
Mental Health Double Standards
Hello Blooms, UM...I HAVE A QUICK QUESTION Why do we respect suffering in silence; not wanting to 'trouble' anyone with a so-called problem? Why do we expect this of ourselves yet encourage other people to talk to us about anything that is on their mind? We are upholding the negative stereotypes we are actively trying [...]
The EDS Chronicles: Fearless Christianity – praying upon the sick and vulnerable
Hello Blooms, I first off want to thank you for the positive feedback I received on my last blog post. It was one regarding the exploitation of disability - and yet again I am here to call out those who are doing just that. Ehlers Danlos Syndrome is a genetic condition causing a defect in [...]
The EDS Chronicles: Dating Shouldn’t be a Chronic Pain
Blooms, Over the past few months, I have been relatively busy over the past few months - attending hospital appointments, travelling to Scotland for a family graduation, seeing friends before the uni year commenced, and OH I downloaded Tinder. My experience with Tinder has been interesting - I've had only decent encounters with people who [...]
The EDS Chronicles: stripes w/ a 100% chance of fog
Blooms, Waking up in the morning, rubbing the sleep out of your eyes, switching off the alarm and opening the curtains. After your eyes have adjusted to the bright light of the Autumn morn, you notice a fog accumulating. You brush it off and continue to get ready for the day ahead. Yet the fog [...]
The EDS Chronicles: skin deep
Blooms... Growing up in a body which behaved differently than those surrounding me, both in my personal life and in the media, was less than a walk in the park let me tell you. The irony. • My name is Lori (Loren), and I am a 19 y/o woman living with a disability known as [...]
