We're often told that "we treat symptoms, and don't like to label people", however I absolutely disagree with this sentiment. It's nonsensical, if there are apparent and physical symptoms of a condition or comorbid conditions and you are purposefully undiagnosed because they don't like to 'label' you, this is so inherently ableist, and I think because you hear this rhetoric so frequently, especially in paediatric care, that it's important to unpick and discuss what's actually at play when they say this, and how it can feed into, and reinforce a patient's internalised ableism.
Tag: cfs
Vaccinated – finally a prick I’m happy to have met
Pulling up in the carpark of our local day hospital, I felt a surge of excitement along with an overwhelming sense of bittersweet relief. Like many disabled people, I had to fight for my vaccine as I wasn’t considered as vulnerable enough to receive a live saving jab, but vulnerable enough to be advised to shield indoors, like I had been for over an entire year.
Needing a carer from a sick person’s perspective | ME Association
Hello, my name’s Lori- AKA ‘Bud to Bloom’, a UK based disability, and mental health blogger living with Ehlers Danlos Syndrome, ME, and a host of other comorbidities. My journey with chronic illness started at age [...]
Let’s end the stigma of mobility aids!
I slowly began to hate using my walking stick, crutches, walking frame, and wheelchair - I failed to invest in my comfort and sense of self-expression because I was living in a state of denial. I didn't WANT to think of a future with mobility aids; it felt like I would be giving in.
I feel it in my bones (announcement)
May 9 - "This past weekend has been rough - my body feels like it's falling apart beneath my skin, uncontrollable; fighting against itself - the epitome of connective tissue disorder." Warm weather is a rarity [...]
A Chronic Perspective of Relationships
"How have your disabilities affected your relationships?" To understand how my relationships have been affected as a result of my disabilities, it's important to understand that my conditions have caused a shift in my relationship with [...]
“Disabled people have sex?”
In March and April I had the amazing opportunity to write blog posts for Intimately - an accessible and inclusive underwear company. Both posts centred around sex with disability - the first about embracing one's sexuality [...]
From Sweats to Suspenders
I think we can all simultaneously agree that it has been a difficult few months, as we're navigating a situation which the majority of us have never experienced before. At first it seemed almost surreal, [...]
When it all gets a bit much
CW: infertility Hello Blooms, It's a f*cking weird time to be alive huh? THE END No I'm only pulling your leg - however this pretty much sums up the alternate reality we seem to be existing [...]
Head above water – where I’ve been
Hello Blooms, We can all agree that during these troubling and confusing times that life seems to be stuck in this weird realm; it feels like each day is melting into the next, yet with the [...]
