As you likely know, especially if you’ve caught up with July’s Patreon newsletter - I have recently started getting tattoos; something I have wanted to do since I was 15. So in other words a long ass time. However I had many hesitations concerning my skin, and how Ehlers-Danlos Syndrome would impact my ability to be tattooed, and whether or not [...]
We as a community understand that, it’s the active listening, fundraising, and making these alterations which is the really important matter - especially regarding smaller businesses. The excuse however, which I often hear being brought up, is using the mere fact you are a small business to deflect criticism about inaccessibility. Just because you’re a small business, doesn’t mean you can’t actively do all you can within your means to acquire support and ensure you’re as accommodating to a large minority.
We're often told that "we treat symptoms, and don't like to label people", however I absolutely disagree with this sentiment. It's nonsensical, if there are apparent and physical symptoms of a condition or comorbid conditions and you are purposefully undiagnosed because they don't like to 'label' you, this is so inherently ableist, and I think because you hear this rhetoric so frequently, especially in paediatric care, that it's important to unpick and discuss what's actually at play when they say this, and how it can feed into, and reinforce a patient's internalised ableism.
Pulling up in the carpark of our local day hospital, I felt a surge of excitement along with an overwhelming sense of bittersweet relief. Like many disabled people, I had to fight for my vaccine as I wasn’t considered as vulnerable enough to receive a live saving jab, but vulnerable enough to be advised to shield indoors, like I had been for over an entire year.
Hello lovelies, I just want to begin by thanking those of you who expressed their support for my recent blog post regarding self-nurture and feeding my inner child. If you are following my Instagram account, or [...]
My relationship with my sexuality has always been disorganized, even before I became legitimately disabled by my conditions. I grew up feeling like I needed to fit into a mold I wasn't shaped for, and a body I didn't even understand was objectified by many people around me from a young age.
Hello lovelies! I hope you're all doing as well as can be expected - especially those out there who're frontline workers or folx in lockdown. It can be incredibly stressful, and I've began go feel the [...]
I am aware that the vast majority of people who have been actively engaging with my content, are involved in the chronic illness/disabled community - and like every single disabled/less abled person I've had the pleasure of talking with, I have experienced difficulties navigating interabled friendships and relationships in the past, purely because of the lack of understanding, and societal ableism which resides in those who haven't had personal experience with disability prior to the friendship.
As I get back on my feet (or wheels so to speak), I feel it to be even more pressing to share ways to support creators -in particular disabled creators; as the social media algorithms appear to be either inadvertently or intentionally targeting the community.
Hello my lovely folx, how are you all doing today? I know it has been long time, no see here on the blog - but that's a topic for another time entirely. As today, I bring [...]